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Old 11-05-2008, 05:47 AM   #1
Chris Parson
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Default i'm dying

i have a rare condition called Bullous Pemphigoid. try doing a google image search to see what it looks like.

basically my immune system is attacking my skin. there's no known cause or cure.

standard treatment is to take large doses of prednisone, antibiotics, and niacinamide until the symptoms subside. this worked ok about 7 years ago, but the symptoms are back. my hand is blistering up and i'm back on the prednisone. this works to temporarily alleviate the symptoms, but when i try to ween off, the blistering comes right back. if it goes untreated, my whole body will continue blistering until i just decompose completely and die. it has gotten really advanced before and it is very painful.

if i keep taking these drugs, i'm going to die too.

i'm presently trying this alternative treatment that involves taking massive doses of seasalt and vitamin C. the theory is that autoimmune disorders are caused by some kind of hidden bacteria and that the salt/c combo will make my body a toxic environment for this bacteria and i'll get better.

i've been doing this for a week or so and have not seen any improvement. today my fingers started blistering up again, and my spirits are really low.

if any of you have any ideas of how to help, i'd really appreciate it. i've been seeking out some kind of shaman who can help me find some answers but have not yet found one.

good vibes/prayers would also be appreciated.

i'm not ready to die.

thanks y'all.

-chris

Last edited by Chris Parson; 11-05-2008 at 06:29 AM.
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Old 11-05-2008, 05:50 AM   #2
Bonnie
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Default Re: i'm dying

I will definitely pray and hold a positive intention for you Chris.
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Old 11-05-2008, 06:01 AM   #3
saggyash
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Default Re: i'm dying

Maybe we can get the Mass Consciousness Coalition to organize a day with a few times throughout the day to send healing energies to you. The more people we get then the success will be made. Might need a picture of you to use in the meditation.
My prayers are with you
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Old 11-05-2008, 06:02 AM   #4
burgundia
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Default Re: i'm dying

I'll visualize your skin healthy today.
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Old 11-05-2008, 06:06 AM   #5
Chris Parson
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Default Re: i'm dying

thanks everybody. i really appreciate the support.

here's a pic of what i look like right now if it helps
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Old 11-05-2008, 06:10 AM   #6
Rocky_Shorz
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Default Re: i'm dying

wow Chris...

Have you ever tried something like...

Cure

Quote:
Pemphitab is a simple but powerful pill treatment for Bullous Pemphigoid. Pemphitab's results are proven scientifically and its succesful use by thousands of Bullous Pemphigoid sufferers gives testimony to its effectiveness.
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Old 11-05-2008, 06:13 AM   #7
Chris Parson
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Default Re: i'm dying

wow that does look promising. i wonder how new it is. never came across it before.
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Old 11-05-2008, 06:18 AM   #8
Rocky_Shorz
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Default Re: i'm dying

you need to remember there are two types of drugs...

The kind that lets you survive through the pain...

and the kind that cures...

Let me know when it arrives and I'll pray for your healing...
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Old 11-05-2008, 06:19 AM   #9
Chris Parson
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Default Re: i'm dying

rocky i'm tearing up right now. thanks really.
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Old 11-05-2008, 06:21 AM   #10
Rocky_Shorz
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Default Re: i'm dying

Quote:
Originally Posted by Chris Parson View Post
rocky i'm tearing up right now. thanks really.
its the least I can do for a Bud...
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Old 11-05-2008, 06:24 AM   #11
Dantheman62
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Default Re: i'm dying

Hey man, there's something called Intravenous Immunoglobulin Infusions usually given monthly, or how about a topical high-potency corticosteroid cream applied to the entire body surface. The Mayo-Clinic says with therapy it usually disappears within 11/2 to 5 years. I don't know if any of this helps but check out the Mayo-Clinic, they know their stuff! They said it's rare for people under 50 and you don't look near that.Also they said they use another drug to ween you off of prednisone. Google Mayo-Clinic and your condition if you haven't already.
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Old 11-05-2008, 06:26 AM   #12
Chris Parson
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Default Re: i'm dying

yeah i have topical steroid cream too. it hasn't been helping much. it only treats the symptoms anyway. i'm excited about this pemphitab though. the website says it was developed within the past few years and admittedly i have been working under the assumption that there was still no real cure.

and yeah i know it is really rare for somebody as young as me to be diagnosed with this disorder. it first cropped up about 8 years ago when i was like 24

Last edited by Chris Parson; 11-06-2008 at 11:58 PM.
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Old 11-05-2008, 06:34 AM   #13
Antaletriangle
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Default Re: i'm dying

I don't know what to say there matey...all i can be sure of is that everyone on here will be empowering positive vibrational fields towards you,chin up and dig deep and no doubt you are! Thoughts are with you my friend!
love,Wayne.
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Old 11-05-2008, 06:36 AM   #14
THE eXchanger
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Default Re: i'm dying

sending 'good healing energies' your way

love
susan / the eXchanger
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Old 11-05-2008, 06:38 AM   #15
Dantheman62
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Default Re: i'm dying

A friend of mine has to take prednisone, along with a bunch of other drugs to knock his immune system down, for the rest of his life because he's had a kidney transplant, basically anti-rejection drugs so his body won't reject the kidney, and he's been on them now 9 years, he's 29, I'm sure his prednisone dosage is different than yours but so far 9 years and he's still o.k. Anyway, good luck with the Pemphitab, PEACE, Dan
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Old 11-05-2008, 06:38 AM   #16
Mikill
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Default Re: i'm dying

I don't know what kind of lifestyle you lead, but a healthy one is going to help you.
On a separate thread i talk about a book titled "The ANCIENT SECRET OF THE FOUNTAIN OF YOUTH" BY PETER KELDER.
It costs around 10 $ and works wonders.You can see people doing the exercises on youtube by searching "tibetan rites".Doing them consistently for a long time can regenerate dying cells.After a very long time you even start replacing live cells.
Learn meditation.
Listen to the Solfeggio Frequencies. http://www.youtube.com/watch?v=_IBXR...eature=related
Take Coral Calcium, it cured me of skin cancer.
Become your own doctor.Rely on yourself, because ultimately your going to have to save your own skin(literaly).
Use a cleansing product that detoxifies your body.
Try to have a more positive outlook because being bummed about it will only make it worse.
Drink a ton of water.
Don't put too much faith in what doctors tell you.You are a payday for them and usually nothing more.They have no incentive to cure you because when they do they lose a client.
Good luck and we at the Mass Consciousness Coalition will defintley keep you in mind!!!!
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Old 11-05-2008, 07:02 AM   #17
crowmirror
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Default Re: i'm dying

chris,
im affraid that all i can offer you is a promise
to pray for you everyday until you are healed
stay strong and never lose hope


Navajo Prayer of Healing (Affirmation)


In the house made of dawn.
In the story made of dawn.
On the trail of dawn.
O, Talking God.
His feet, my feet, restore.
His limbs, my limbs, restore.
His body, my body, restore.
His mind, my mind, restore.
His voice, my voice, restore.
His plumes, my plumes, restore.

With beauty before him, with beauty before me.
With beauty behind him, with beauty behind me.
With beauty above him, with beauty above me.
With beauty below him, with beauty below me.
With beauty around him, with beauty around me.

With pollen beautiful in his voice, with pollen beautiful in my voice.
It is finished in beauty. It is finished in beauty.
In the house of evening light.
From the story made of evening light.
On the trail of evening light.




crowmirror
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Old 11-05-2008, 07:04 AM   #18
RubyTuesday
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Default Re: i'm dying

Have you tried reiki?

Also, I HIGHLY recommend MAP. Get the book:
http://www.perelandra-ltd.com/MAP_Th..._Bro_P1293.cfm

Here is more info on MAP but again, the book is much more detailed and worth the buy.
http://www.energeticsynthesis.com/in...tent&task=view

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Old 11-05-2008, 07:18 AM   #19
Jma
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Default Re: i'm dying

Have you tried Chi Kung?
Check out Sifu Wong Kiew Kit Web site he´s cured Cancer, endometriosis, psoriasis, depression etc , through the Oriental theory of energy imbalance.
You do have to pay for their courses though.

http://www.wongkk.com/
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Old 11-05-2008, 09:24 AM   #20
omeriko
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Default Re: i'm dying

hi,
i can see you've despaired of the standard medical treatment so i'm going to offer you some nonstandard stuff.

i've been hearing a lot, and learning of, quite a few opinions saying maybe mainstream science doesn't know all too much about the human body.

raw foodists and others claim that most (or every) disease is caused by the body being filled up with "mucus" that blocks the passageways in our body (digestion tract, blood vessels etc.) which forms a breeding ground for bacteria and such, and blocks the regular functioning of the body besides.

they impliment methods such as fasting, laxatives and enemas to clear the body of this disruption, and claim to be able to cure "uncurable" diseases such as cancer and aids.

I for one, find their arguments very convincing, and have a good intuitive feeling about this.

i can't confirm anything. i'm not usually sick, so you're kinda going blindly with this if you try. but if it works i'd very much like to hear so i can recommend it to others if the situation arises.


anyways:

Dr. Richard Schultz (or Schultze) is a good start. you can find a lot of his stuff here http://healingtools.tripod.com/DS_pages.html
check out the videos: "the incurable program" and the "natural healing crusade".
also i bet you can call him and arrange a meeting.

another place is www.rawfoodexplained.com where you can find tons of information.

also you can check out Arnold Ehret's books, they cost like $5.

but since you are dying i guess you should set an appointment with Dr. Schultz if you're trying this approach (he doesn't pay me to say this, i'm half the world away).

yours in health.

Omer.
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Old 11-05-2008, 09:29 AM   #21
Tuza
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Default Re: i'm dying

I know some chronic conditions have cleared up by people going to chinese herbalists - maybe give that a try Chris - sending healing too.
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Old 11-05-2008, 09:42 AM   #22
rhythm
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Default Re: i'm dying

sending you a tidal wave of love let it wash over you .
i love you friend ,
i get a sharman would be helpfull here .
friend in spirit , rhythmmmm .
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Old 11-05-2008, 09:47 AM   #23
Corky
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Default Re: i'm dying

Dear Chris

Looking into your eyes my heart is drawn to you like a magnet.

I can offer no remedies at this time but I will pray that your spirit stays strong through this journey.

Love

Corky
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Old 11-05-2008, 09:54 AM   #24
sunny D
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Default Re: i'm dying

Dont give up hope.....I ve been very ill six years ago and more then nearly dead and I am still here. The healingpower is with and in you. Lots of love and light I send u. I just lit a candle for you........ Namaste........ Sandra
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Old 11-05-2008, 10:09 AM   #25
Tuza
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Default Re: i'm dying

Try these links as well Chris:
hnmrc.net
and
Pemitin.com

although I think the latter one could be the same as someone else posted, not sure.

Keep looking.
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